Rachel Eileen von Tungeln

Rachel Eileen von Tungeln, 16

Rachel died on Saturday, April 8, 2017 at home with her Mom at her side. Rachel died as a result of complications from Juvenile Batten Disease, a neurodegenerative, genetic brain disease that she was diagnosed with in 2009. Despite being born healthy and going completely blind, becoming bedridden and slowly suffering from dementia, Rachel never…